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CHARGE Syndrome

Support Organisations

• CHARGE Family Support Group This UK based support group provides a dynamic resource for parents, carers and professionals involved in the lives of people with CHARGE.
• The CHARGE Foundation is an American organisation.  See information about CHARGE for an overview of CHARGE.  See Resources for a comprehensive and informative downloadable Parent Management Manual and information aimed at different professionals.
• CHARGE Syndrome Association of Australasia
• CHARGE Syndrome Canada Includes a short guide for parents, a pamplet and an international online forum.
• SENSE A UK support group for people with hearing and sight difficulties and their families. Includes practical guidance and fact sheets about CHARGE syndrome.

Forums

• UK Charge Support Online forum for parents and people with CHARGE
• US Charge Syndrome Support for people with CHARGE, parents, family members, doctors, therapists, or anyone working with a person who has CHARGE Syndrome.
• CHARGE Syndrome Canada Online forum

Journal Articles about CHARGE

 

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