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Causes of MSI (Syndromes and Conditions)

Cytomegalovirus (CMV)

Information

The following two links are are good starting point

• National Deaf Children's Society Information for Parents 'Congenital cytomegalovirus and deafness' You need to be a member to access this information but membership is free to parents of deaf children and the professionals who work with them.
• National Congenital CMV Disease Registry (US) Information booklet - 'What everyone should know about CMV'

More links

• CDC Website CMV
• Deafblind International CMV
• A - Z of Deafblindness CMV by James Gallagher
• The Ear Foundation run a one day CMV Focus Day.  Search their website for course dates.  Reduced rates for parents.
• Journal of Paediatric Child Health (2005) Research paper- Symptomatic infant characteristics of congenital cytomegalovirus disease in Australia
• Government of South Australia Information on transmission, diagnosis and management

Support Groups

• The UK Congential CMV Association The Association is run on a voluntary basis by the parents of CMV children. They publish a regular newsletter, put families in touch with others, raise awareness and aid CMV research.
• Contential CMV Association (America)

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