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CHARGE Syndrome

CHARGE Syndrome originally came from the first letter of some of the most common features seen in children with this syndrome.

C Coloboma (eye defects) H Heart defects A Choanal Atresia (nasal blockage) R Retardation of growth and development G Genitalia (small penis, undescended testicles) E Ear anomalies and/or hearing loss

• SENSE A UK support group for people with hearing and sight difficulties and their families. Includes practical guidance and factsheets about CHARGE syndrome.
• CHARGE Family Support Group This UK based support group provides a dynamic resource for parents, carers and professionals involved in the lives of people with CHARGE.
• The CHARGE Foundation is an American organisation.  It includes a range of information about CHARGE including frequency of features, medical management.
• RNIB information about Coloboma,  the cause of visual difficulties in CHARGE Syndrome

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